"You have Cholesteatoma." My doctor told me "Left untreated, it will become fatal". Those were the exact words my doctor said to me. Cholesteatoma, I had never even heard of it. I knew nothing of what it was or what it did. My doctor did his best to explain to me what it is. Skin tumors. Skin cysts. Dead flesh. Building up within my head. Inside my ears. Digging away at my flesh and bones.
Let me move away from the moody and dramatic writing style to give you some background. Since I was young I have always had ear troubles. My mother would call for me, and I would never hear her. I would sit in the front of class just to hear a little better. Every time someone started a conversation with me, they knew the first thing I would say back to them would be "What?" I have had three sets of tubes put into my ears, starting at the age of 8. A regular physician wouldn't have been able to notice what was building inside my ears, so they would just keep recommending remedies to soothe my ears instead of cure them. I had seen an ENT off and on growing up, and he had never noticed anything wrong with my ears other than perforated ear drums and fluid build up. It was until the late summer of 2015 that my ears finally drove me to look for answers. I would fall over from imbalance just from closing my eyes for too long while standing. My ears leaked constantly and the pain was outlandish.
I set an appointment to finally get another check up. I hadn't had one in over 5 years. I went to a new doctor in Willmar. Within the first few seconds of looking inside my ears he made some... Not so promising grumbles. He started suctioning my ears and pulling out bloodied scraps. When he finished, He sat me up at told me.
Cholesteatoma. All these years and I finally have a name for you. In my left and right side, behind what is left of my ear drums. Digging away at my bones, moving closer and closer to my brain. I finally have your name, and a solution.
Thank you for reading my first blog post about my disease. I've never done anything like this before, and I hope it can help my anxiety and stress. It was recommended to me by my friend Shelby. She lives with a disease called Postural Orthostatic Tachycradia Syndrome.
She has a blog over at http://youngandlivingwithpots.blogspot.com/ Feel free to check it out if you wanna learn more about her life and struggles living with a chronic illness.
I set an appointment to finally get another check up. I hadn't had one in over 5 years. I went to a new doctor in Willmar. Within the first few seconds of looking inside my ears he made some... Not so promising grumbles. He started suctioning my ears and pulling out bloodied scraps. When he finished, He sat me up at told me.
Cholesteatoma. All these years and I finally have a name for you. In my left and right side, behind what is left of my ear drums. Digging away at my bones, moving closer and closer to my brain. I finally have your name, and a solution.
Thank you for reading my first blog post about my disease. I've never done anything like this before, and I hope it can help my anxiety and stress. It was recommended to me by my friend Shelby. She lives with a disease called Postural Orthostatic Tachycradia Syndrome.
She has a blog over at http://youngandlivingwithpots.blogspot.com/ Feel free to check it out if you wanna learn more about her life and struggles living with a chronic illness.
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